Réalisation d'un outil numérique d'aide à l'élaboration d'un projet de vie pour les personnes avec Trisomie 21 et enjeux futurs



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Many studies have shown that people with Down’s syndrome have cognitive impairments that prevent them from functioning like the rest of the population on a daily basis. For instance, people with Down’s syndrome are not self-determined. So, it is difficult for them to make choices.

The French legislation “le droit à la compensation” released in 2005 now enables those people to define their life project. The Phoenix research group at the INRIA is developing a digital tool to help people with Down’s syndrome plan their life project.

We selected a group of subjects aged from 5 to 12 years old, that shared the same mental age as those with Down’s syndrome. They were tested on a mock-up, to create a prototype on a participatory design. This prototype is the first part of our digital tool, which tests the ability to make choices.

The digital tool should make it easier to write a life project in an easily accessible and entertaining way. It could also be generalized to other disabilities.